PACS1 is an ultra-rare genetic disorder only found currently worldwide in 120 children.

There is no cure and this has only been diagnosed in the last 8 years. We need to raise Funds to carry out  research and then ongoing support to the family’s as many of the children cannot eat and are fed through tubes and fit almost every day. The children will always be living with their parents and later on in life many will have to be in homes which as you can imagine is heart breaking for all involved.

Our Goal:

We are fundraising to build a project known as "Whole Life Villages"

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PACS1 Research UK
HSBC account 71715887 sort code 40-12-03


Wacky Races Rally In Aid of PACS1 UK

The Wacky Races 2022 European Rally is an event you will not want to miss! Raising money for the PACS1 UK charity join us as we drive through Europe on some of the most breath-taking roads and party all night in the most exciting cities!

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PACS1 UK Golf Days

2022 information coming soon.

Wanna know more about our events?

See the full list

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